Charlie Gard's parents offer support to Alfie Evans' family after tragic tot's death
By Rebecca Curley30th April 2018, 12:45 amUpdated: 30th April 2018, 1:21 am
THE parents of Charlie Gard have sent a heartwarming message to the mum and dad of Alfie Evans saying: "You both did what you thought was right for your son".
Chris Gard and Connie Yates, who like Alfie's parents Tom Evans and Kate James, lost their fight to take their gravely ill son abroad for pioneering treatment.
Their brave little boy, who had mitochondrial DNA depletion syndrome (MDDS), died a week before his first birthday in July last year after an agonising legal battle.
Speaking for the first time since burying Charlie last August, Chris, 33, and Connie, 32, offered Alfie's parent s hope as they come to terms with their grief.
In an interview with The Mirror the couple said: "Life will seem not worth living at the moment but you will smile again.
"You both did what you thought was right for your son, out of love.Alfie Evansâ parents confirm the 23-month-old has died almost five days after doctors turned off his ventilator
"Your lives will never be the same again. But because of what you've been through together, your love for one another will be strengthened."
Little Alfie, aged 23-months, passed away in the arms of his mum and dad in the early hours of Saturday after surviving almost five days without life support.
For Charlie's parents Chris and Connie seeing the pain on the faces of Tom and Kate as they went through a similar experience of legal battles and bedside vigils, the couple decided to speak out.
Earlier this week Chris and Connie backed calls from Alfie's parents for a change to the law to give families more power over hospital care.The heartbreaking story of baby Charle Gard
They have now launched the campaign Charlie's Law and on Sunday put out a call to action for people to write to their MP asking for support.
Chris and Connie, from Bedfont, Middlesex, have also set up a foundation in their son's memory called Charlie Gard Foundation dedicated to fighting mitochondrial disease by raising awareness and funding research of the illness.
In their interview, Connie said: &quo t;We feel the pain of Alfie's parents. Chris and I know how devastated and empty they will be feeling as their desperate fight to save Alfie has ended.
"Seeing them go through the agonies we have done has been incredibly hard.
"Their case has come so soon after ours and seeing them stood outside the same courts, pain etched on their faces, has been heartbreaking.
"It has resurrected very painful memories about our own journey. Sometimes it has been too painful to watch.
"I don't think any parent can fail to have been moved by the way Tom and Kate fought for Alfie. After all they are lovi ng parents who would do anything to save their child's life.
"And now Alfie's case has made us even more determined to fight for new laws to give parents more say in what happens to their child so that other parents might be spared the agony."
Baby Charlie died aged 11 months old last July just a week before his first birthday after a long fight against a disease called mitochondrial DNA depletion syndrome.
His fight for life touched the world as Connie and Chris fought against a decision by doctors at Great Ormond Street Hospital who applied for permission to have Charlie's ventilator switched off.
They wanted to take him to the US for pione ering treatment and took their fight all the way through the court system of the UK and Europe.
Alfie was admitted to Alder Hey Children's Hospital in Liverpool in December 2016 aged seven months. It was believed he had a mitochondrial disorder, similar to Charlie, and parents Tom, 21, and Kate, 20, experienced a similar court-battle as they fought to take their son to a hospital in Rome.
Both couples lost their legal cases to take their poorly children out of the country for treatment elsewhere.
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Dad Chris said: "People thought Charlie's case was unique but the fact Alfie's case followed so swiftly shows it is not.
"In fact these cases are not that rare, which is why the law in this area needs to be addressed."
They have offered to meet with Tom and Kate when they feel up to it.Footage posted shows Alfie Evansâ eyes open after life support is turned off
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